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More diagnosed with Coeliac Disease

More diagnosed with Coeliac Disease

Coeliac UK, the national charity for coeliac disease announces today, 12th May 2014, new research from the University of Nottingham that has found a fourfold increase in the rate of diagnosed cases of coeliac disease in the UK over the past two decades.

The National Institute of Health & Care Excellence (NICE) previously estimated that only 10 - 15% of those with coeliac disease had been diagnosed, however, this latest research by Dr Joe West from University of Nottingham, funded by Coeliac UK and CORE has shown that the level of diagnosis has increased to 24%.

Coeliac disease is an autoimmune disease caused by intolerance to gluten. Left untreated it may lead to infertility, osteoporosis and small bowel cancer. 1 in 100 people in the UK have coeliac disease, with the prevalence rising to 1 in 10 for close family members.

The only treatment for coeliac disease is a strict, lifelong gluten-free diet. Gluten is a protein found in wheat, barley and rye and, once diagnosed, people with coeliac disease need to eliminate all gluten-containing foods and make sure they only eat gluten-free varieties.

Researchers identified the number of people diagnosed during the study period using the diagnostic codes for coeliac disease recorded in the Clinical Practice Research Datalink (1990-2011). This research, published by The American Journal of Gastroenterology comes out as the charity celebrates its annual Awareness campaign, which this year is entitled the ‘Gluten-free Guarantee’ and aims to improve availability of gluten-free foods in stores across the UK.

Sarah Sleet, chief executive of Coeliac UK said: “This latest research shows that nearly a quarter of people with coeliac disease have now been diagnosed and gives an up-to-date picture of the diagnosis levels across the UK. Of course, increasing numbers with a diagnosis is good news and will inevitably mean that there will be an increased demand for gluten-free products in supermarkets. But the three quarters undiagnosed is around 500,000 people – a shocking statistic that needs urgent action.”

From 12-18 May 2014 the charity is asking people across the UK to support the ‘Gluten-free Guarantee’, which asks supermarkets to commit to have in stock eight core items of gluten-free food, making it easier for people with the condition to manage their gluten-free diet.

The symptoms of coeliac disease range from mild to severe and can vary between individuals. Not everyone with coeliac disease experiences gut-related symptoms; any area of the body can be affected. Symptoms can include ongoing gut problems such as bloating, abdominal pain, nausea, constipation, diarrhoea, and wind, and other common symptoms include extreme tiredness, anaemia, headaches and mouth ulcers, weight loss (but not in all cases), skin problems, depression, and joint or bone pain.

Please see http://www.nature.com/ajg/journal/vaop/ncurrent/abs/ajg201455a.html for more information

Coeliac UK has a helpline on 0845 305 2060 and further information can be found at www.coeliac.org.uk

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